Joanne contacted Family Fund after they promoted the Work IT Out programme on Facebook. Her son has DiGeorge syndrome – a rare condition which means he needs a lot of support both day and night. We supported Joanne to apply for the extra payment of tax credits – as she feeds back below this payment has made a huge difference to family life – so much so that it has allowed them to move home to accommodate the needs of their children.
“I have two children and my two-year-old has a range of medical needs, including a tracheostomy, which means he needs to be monitored overnight so that we are alerted if his tube blocks or comes out. He is also tube fed. He is currently sharing a room with us because we live in a two-bedroom house and the monitors that he uses at night would disturb his sister. I followed the advice I was given by the Family Fund and have just recently received a pretty large back payment for the disability element which means we can now afford to move to a house where my son can have his own bedroom instead of sharing with us!
"This money has helped us with the deposit for the new house – we wouldn’t have been able to find this on our own. The ongoing extra payment we will get will also help us cover the extra costs we face every month because of our son’s needs – like needing to have extra heating, electricity and the travel costs to appointments at Alder Hey Hospital, which is a 2 hour drive for us from home. We are so grateful for this advice and extra help.”